Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Gigi's.

Gigi is a joyful and radiant 9-year-old living with Phelan-McDermid Syndrome, a rare chromosomal deletion (22q13.3) that affects expressive and receptive language and cognitive development. At age 3, Gigi showed early signs of delays in these areas. As she began speech therapy, occupational and physical therapy were soon added. A referral to a neurologist led to genetic testing, which confirmed her diagnosis. Though she faces academic, social, attention, and physical challenges, Gigi is making remarkable progress every day.
 
Her vibrant personality shines through as she adores all things princess, especially dressing up and twirling in her favorite gowns. Singing, dancing, and making colorful art are some of her favorite ways to express herself. Gigi shares a special bond with her sister June, whom she adores. Whether she’s painting, singing an original song, or spinning in a ball gown, Gigi brings joy and inspiration to everyone lucky enough to know her.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Gigi's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $67,000 for CC4C's mission.