Rise for Rare

Your moment to change the future — because children like Rose can’t wait. 

When Casey McPherson’s daughter, Rose, was diagnosed with an ultra-rare genetic disease, he was told there were no treatments, no cures, and no answers. 

Instead of accepting “there’s nothing we can do,” Casey founded To Cure A Rose Foundation to fight for Rose — and for millions of children like her.

Rise for Rare is our bold, three-year, $6 million campaign to accelerate genetic treatments for rare diseases. This is more than fundraising — it’s a movement to disrupt a broken system, unite families and scientists, and build a faster, smarter path to cures.

With your support, we are funding the science, innovation, and infrastructure needed to bring lifesaving therapies to life — not someday, but now. Every dollar you give fuels urgent research, speeds treatments to children in need, and gives families more than a diagnosis: it gives them hope.

Together, we are rewriting the future for children like Rose — a future where no child is left behind because their condition was “too rare.”

Join the movement. Be the breakthrough. Be the cure.

Leadership Giving

If you would like to lead the way and make a transformational leadership gift to help us launch this campaign and bring hope to more children, please contact Colleen Anderson-Hawthorn, President of To Cure A Rose Foundation at colleen@tocurearose.org. Leadership gifts may be made as a one-time commitment or spread over a 1-, 2-, or 3-year period, giving you the flexibility to maximize your impact while driving urgent progress forward.