Thursday, June 11, 2026 | 6:00 PM | Glen Sanders Mansion

Join us for an unforgettable evening filled with smooth jazz, premium cigars, and vibrant community spirit—all in support of families living with neuromuscular diseases. This inspiring annual event brings together community leaders, corporate partners, MDA families, and dedicated supporters to help advance the groundbreaking research taking place at the RNA Institute at the University at Albany and the University of Rochester.

For 75 years, MDA has been at the forefront of accelerating research, improving care, and championing inclusion for families affected by neuromuscular diseases. Across New York, more than 17,609 people are living with these conditions, with over 9,200 annual visits to one of the state’s 17 MDA Care Centers.

MDA’s commitment to advancing myotonic dystrophy research remains strong investing nearly $1 million in DM grants in 2024 alone. Today, there are 10 active DM research grants underway, continuing a legacy of more than $3 million invested over the last five years and more than $53 million invested to date.

Your presence at All That Jazz brings hope, progress, and possibility to thousands of families. Together, we are driving discoveries, strengthening community, and empowering every individual affected by neuromuscular disease to live longer, stronger, and more independent lives.

Discover the Cutting-Edge Research Behind Myotonic Dystrophy

The RNA Institute at the University at Albany is at the forefront of groundbreaking research to understand and combat Myotonic Dystrophy (DM). Their innovative work is uncovering the molecular mechanisms that drive this condition and accelerating the development of potential therapies.

Watch their special All That Jazz video to see how their research is making a real difference for families living with DM, and learn how science and community come together to bring hope, progress, and possibility.